CPK is down to 1418! That's down from 2340 last Monday! We are very excited to see that number. With the exception of a few spikes, it's steadily decreasing- a good thing! Dr. Nathalie is hoping in 2-3 weeks it should be down to the "normal" range. I'm pretty shocked at that number due to how crummy I'm feeling this week. Honestly, I REALLY thought it was going to be elevated... so PTL! So, obviously I can't correlate at this point in time my CPK and my physical pain/strength.
I also just finished with first round of physical therapy this afternoon. Today was more of a consult to assess my strength and history. It's been three months now of no exercise and my good doctor (as well as I) is concerned I am going to downward spiral with more weakness due to lack of any PT. I'll go again on Thursday and aim for 2 sessions/week. The PT said my muscles hadn't completely atrophied due to some of the strength I was able to show him (shocked!) so that was encouraging. He did say I had a long road ahead of me, and that he couldn't do the exercises for me. I told him I was HIGHLY MOTIVATED so need not fear!!!! He said it takes little time to LOSE muscle mass, but lots of time to GAIN back muscle mass.
It's been a long day (apt. at 11:15 then she scheduled a 2:45 PT apt...grabbed a bite to eat and hung out with our friend, Julie, who lives near the clinic, then returned for PT). MAYBE I should sleep well tonight?? Oh, that would be oh-so-lovely!
Side note...pray for Abigail. When we got home she just started crying and said she was really missing her friends back home. One of the very few times I've seen her so visibly shaken. I know the mundane of this illness is causing great boredom, etc. for her (and all of us). We still haven't received result of muscle biopsy from Bangkok. They said it would take several weeks though. The bruising of the biopsy just looks horrific...looks like a got into a major fight with someone. I didn't- promise!
Other praise updates:
*Friday, I tanked emotionally, but Saturday/Sunday He saw fit to give me 180 degree turn on that. He knows how much I (we) can handle!
*Sweet friend, Maren, took the girls one afternoon for us last week. The girls had loads of fun at the botanical park. They roller skated and had mango juice...thank you!
*Jenny and Jill both brought delicious meals for us last week...thank you!
*Mom, Dad, Debra, Deborah, Kristina, Grace, Brantley, Cynthia, Diana and Tracey have been rounding up items from back home that David will bring back when he returns to state for his training in a few weeks.
*I actually got excited about the girls new history curriculum for next year. You KNOW that's a huge praise for me (hee hee!!). Mystery of History seems like a pretty cool curriculum!
*Abigail says her praise is that daddy is going to bring back large amounts of chocolate from the states for her... AND school is almost done!
*Audrey An says her praise is that daddy is going to bring back her mermaid costume and princess crown for her!
*David is getting to clear his head when he gets to go fly! (and since we don't have enough "aviation" in his blood, he acquired a remote control helicopter over the weekend. It looks like a UFO in our dining area when all the lights are out in the apartment and the helicopter lights are on!).. So glad our buddy, Gregg, and David are like two kids in a candy store when they play with their new toys together!
* I've got a great family...willing to go through the fire with me!
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